Neurofibromatosis Type 2 (NF2) is a rare genetic condition, which affects people in different ways, but often causes benign tumours typically in the brain and spine which can lead to hearing loss and mobility problems due to the pressure exerted on the nerves.
Can You Hear Us? Is a community interest company on a mission to prove that it is possible to live a happy and fulfilled life whilst battling a degenerative condition.
Their work includes:
- Our Community: A free online forum for NF2ers, family, friends and carers to connect. This includes a private "Just for NF2ers" area for verified NF2ers that other members are unable to see.
- Living With NF2: From Us to You: A new book being written to contain information and practical advice for people with a diagnosis of NF2.
- Social Gatherings: bringing people with NF2 together in a carefree, friendly atmosphere.
Visit the website for details.